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Two of Epilepsy Action's objectives are to raise awareness in our target audience about epilepsy and about us and our work, and to bring about permanent change for the social and medical benefit of people with epilepsy.

We do these by running two different types of campaign: lobbying campaigns and awareness raising campaigns.

 

National Epilepsy Week 2009 - taking action

National Epilepsy Week (NEW) 2009 takes place from 17-24 May. Epilepsy Action is using this week to keep up the pressure on politicians to improve epilepsy services across the United Kingdom and needs your help...

More information

 

Awareness raising campaigns

Awareness raising campaigns are campaigns where we seek to inform a particular group of people about a particular topic or issue: 

'Epilepsy Aware'

Making GP practices, pharmacies and beauty salons more aware of the needs of people with epilepsy by getting them committed to three important principles 

Women's Campaign 

An ongoing series of campaigns to raise awareness of the particular issues facing women with epilepsy.

'Take Control'

Helping people with epilepsy to take more control of epilepsy symptoms, treatment side effects, The support resources, their rights and their future
  

Education campaigns

Including training for pre-service teachers, all-party parliamentary group on epilepsy, education and skills select committee and awareness in schools

Consistency of supply

People with epilepsy should receive the same version of anti-epileptic drug (AED) whenever they get a repeat prescription unless their clinician prescribes otherwise. It should be from the same manufacturer, and indeed from the same country of manufacture. This applies to ‘branded’ generics and the usual brand leaders alike.

Primary schools awareness project

The scheme plans to deliver short training sessions for free to primary schools in three Local Education Authorities across the West Midlands.

 

Lobbying campaigns

Lobbying campaigns are campaigns where we ask our members and those with an interest in epilepsy to contact decision makers to seek improvements:

Mapping UK Epilepsy Services (August 2008) 
Welsh epilepsy care plan (February 2008)
All-Party Parliamentary Group on Epilepsy inquiry (England, spring/summer 2007) update June 2007
Epilepsy specialist nurse campaign (UK, November 2006) 
National Service Framework (England, March 2005)  
Consensus Statement (England and Wales, 2004)  
Government Action Plan on Epilepsy in England (2003) 

In Northern Ireland we have had a consultative meeting with the Department of Health and Social Services and Public Safety with a view to producing an action plan in the province, and in Scotland we have offered our assistance to the Chief Medical Officer.

 

Awareness raising campaigns ›

Comments

Re. Free Bus Passes

I am on Incapacity Benefit due to epilepsy, although I am not considered qualifying for DLA. However, because I only have seizures in my sleep once every lunar month I am also in posession of a full (3 year) driving licence.

If I were in receipt of DLA I would automatically be entitled to a Free Bus Pass, similarly if I were to be refused a driving licence on medical grounds.

The problem is that being on such a limited income there is no way I would be able to afford to run a car with the prohibitive insurance premiums alone, to say nothing of the other running expenses, such as tax, fuel & general maintainance.

I believe the government should be lobbied to extend the qualifying conditions to entitle anyone in similar situation to one of the Free Buss Passes.

Submitted by Jerry Gamble (not verified) on 6 December, 2008 - 08:28.