Manifesto 2024
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Manifesto update Dec 2024
We recently attended a meeting with the Minister for Patient Safety, Women’s Health and Mental Health, Baroness Merron, to discuss sodium valproate and the potential redress scheme for those harmed by valproate.
The Baroness is looking to formulate the Government’s response to the recommendations of the Hughes Report, including the creation of a redress scheme for those harmed by valproate. We will continue working to ensue that those harmed by valproate get the compensation they deserve.
In Northern Ireland, we met with Colin McGarth MLA, the Health Spokesperson for the Social Democratic and Labour Party, to discuss how we can work together to make sure that any redress scheme announced by the Government includes Northern Ireland.
We will keep you updated with our progress.
The issues
Health and social care: We need epilepsy to be prioritised within health and social care and the shortage of specialist nurses and neurologists to be addressed.
Justice: We need justice for the most vulnerable people with epilepsy to ensure everyone is treated fairly.
Work and benefits: People with epilepsy need to be empowered to access work and benefits so they are able to live independently.
Our manifesto was created with support from the Neurological Alliance and INQUEST.
How can you get involved?
We want to make sure every MP sees our Manifesto and understands the issues affecting people with epilepsy.
By contacting your local MP and sharing your story, you will be helping to amplify the voices of people with epilepsy and why the newly-elected government needs to treat them as a priority.
You can download a PDF of the Manifesto and letter templates below or we can email you a version.
Send it on to your MP (you can find them here).
You can let us know which MP you have emailed by copying us in to your email (our email is campaigns@epilepsy.org.uk)
You can also:
- Get this manifesto by email to send to your candidates in your area
- Find out who is standing in your constituency
- Share this page on social media
Download a PDF of the Epilepsy Action Manifesto and letter templates
Send me the Manifesto by email
Want to do more?
Join out work to improve the UK for people with epilepsy by volunteering with our campaign team.
