Support when someone with epilepsy has died

If you would like to talk to someone about epilepsy, you can call the Epilepsy Action Helpline on 0808 800 5050.

SUDEP Action
SUDEP Action aims to increase awareness of epilepsy risks and tackle all epilepsy deaths, including Sudden Unexpected Death in Epilepsy (SUDEP). It is the only UK charity with specialist expertise in supporting and working alongside anyone bereaved by epilepsy. Their services include bereavement support, counselling, support in understanding the inquest process and involvement of bereaved families and professionals in research through the Epilepsy Deaths Register.

Tel: 01235 772 850
Email: support@sudep.org

Child Bereavement UK
Supports families when a baby or child of any age dies or is dying, or when a child is facing bereavement.
Tel: 0800 0288 840
Email: helpline@childbereavementuk.org

Cruse Bereavement Care
Offers support, advice and information when someone dies.
Tel: 0808 808 1677
Email: helpline@cruse.org.uk

Gov.uk

The UK government can sometimes help with funeral costs in certain circumstances.

Help is at Hand
The Support after Suicide Partnership provides practical information to help anyone affected by suicide find support.

The Epilepsy Deaths Register

The Epilepsy Deaths Register provides researchers with anonymised information on epilepsy deaths. You don’t need to be related to the person who has died, and you can register their death at any time.

Turn2us

Provides information about benefits and support that might be available if you’ve been bereaved.

Winston’s Wish
Supports children and young people after the death of a parent or sibling.
Tel: 08088 020 021
Email: ask@winstonswish.org