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of everyone affected by epilepsy


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Epilepsy Action wants to provide the best service it can. To help us do this, we value your feedback and we are committed to using your comments to develop and improve the way we work.

We welcome comments, compliments and complaints.

Comments: read the 5 comments or add yours


This is typed by my support worker by lip reading my words that a question I need to find out. Firstly I had a very enjoyable job teaching physics etc. I was a very active rock climber also. in 1999 after 30 years of working, I passed out next moment I was in the hospital. I had a scan which by then was diagnosed with grand mal seizures. For a year I was on 6500 overnight in 2008 I was clear with non-epileptic and took all my drugs away which I was over the moon I can drive again and get into working again. With being taken off it went to 18 in day 3 at night 4 min long throughout the weeks. I was stopped then not after seeing the neurology only nurse. As a few weeks went by I was having further seizures 18 av 4 but other developments started to occur I had to see a professor who picked up what the neurology did not pick up twice two mild strokes. also by then through multi tests, my sensory was becoming damaged. Over a short period of time, the sensory affected Sevier blind mute from the right side of brain sensor damage brain. Then with the non-epileptic was not easing after one seizure I was out for a while in and out with miniature nonepileptic. with damage with throat sick but solids, I could no longer swallow with a peg in the side with a syringe. My legs have no sensation after all the tests going in a wheelchair. With reduced epileptic now with unknown to me taking epilepsy tablets, this is in single figures. With the neurology from the old hospital, I only see the nurse which the question is not relevant and coming out why to go do I need to go as nothing happens and have non-epileptic. Just be glad when all these appointments stop. Certain matters don't match up through this is confusion. Have or not, I have other concerns to think about.

Submitted by Geoff Bosworth on

I'm 45 years old I was diagnose with epilasy, when I WS 38,2013 I WS having seizure then 4:years past without having suzure BT now I became sensitive if I gt angry then then the suzure start, why I'm having so many suzure nw I'm on medication I don't drink

Submitted by Ndeshi on

Hi Ndeshi

Seizures can start again for many reasons. The most important thing is to get back to see your specialist about this.

They will do some investigating to find out why. For some people the explanation can be to do with certain possible seizure triggers.

Stress can be a particular seizure trigger. We have more information about ways in which you can help to manage your stress levels.

For some people seizures which are especially stress-related may be dissociative. Your specialist will see if this is possibly what is happening for you.

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Helpline freephone 0808 800 5050.



Epilepsy Action Helpline Team

Submitted by rich on

August 29th 2019

Dear Sir/Madam
I live in the republic of Ireland and am an epileptic, currently taking Vimpat and Keppra. I would like to know will there be a continuous supply of all anti epileptic drugs to Ireland or could there be a continuous disruption of supply, starting on October 31st 2019. If there could be a continuous disruption in supply of all anti epileptic drugs, when could that situation occur.

I look forward to hearing from you at your earliest convenience

Yours faithfully

Gabrielle Beausang

Submitted by Gabrielle Beausang on

Dear Gabrielle,

Thank you for your comment and email. I have replied to your email and I hope that answers your questions.

Best wishes,


Epilepsy Action Helpline Team

Submitted by Ashley - Epilep... on

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