Our fundraising promise

How we raise and spend the money you donate

Our Fundraising Promise outlines our commitment to donors and the general public – that every aspect of Epilepsy Action’s fundraising is legal, open, honest and respectful.

Epilepsy Action is registered with the Fundraising Regulator. We are also a member of the Chartered Institute of Fundraising.

The money you raise

We’re hugely grateful for the generosity of the public, companies and other funders. In 2023, you helped us raise £2.7m. This means that together we can create a world without limits for people with epilepsy.

How we spend your money

We spend 67p in every pound supporting people with epilepsy. The rest goes towards running the organisation, including generating funds and planning for the future.

Find out more by reading our annual report and accounts for 2023.

 

Public notice – an update to our Sapphire Nurse Fund

Epilepsy Action intends to change the purpose of the Sapphire Nurse Fund, originally established in 1995 to provide epilepsy services, support professionals, and influence decision makers.

The proposal is for any remaining funds (held by the Sapphire Nurse Fund) to now support the charity’s core objectives. This change aligns with the fund’s original goals, as Epilepsy Action continues to offer services, professional support, and advocacy for epilepsy through its helpline, membership, and campaigning work.

If you would like to find out more or make a comment on the proposed change please email funding@epilepsy.org.uk. Please ensure all comments are made by Monday 16 September 2024

What is the Fundraising Promise?

Our Fundraising Promise outlines our commitment to donors and the general public – that every aspect of Epilepsy Action’s fundraising is legal, open, honest and respectful.

Epilepsy Action is registered with the Fundraising Regulator. We are also a member of the Institute of Fundraising.

We will commit to high standards

  • We will adhere to the fundraising Code of Practice.
  • We will comply with the law as it applies to charities and fundraising.
  • We will display the Fundraising Regulator badge on our fundraising material to show we are committed to good practice.
  • We will monitor fundraisers, volunteers and third parties working with us to raise funds, to ensure that they comply with the Code of Fundraising Practice and with this Promise.

We will be clear open and honest

  • We will tell the truth and we will not exaggerate.
  • We will do what we say we are going to do with donations we receive.
  • We will be clear about who we are and what we do.
  • We will give a clear explanation of how you can make a gift and change a regular donation.
  • Where we ask a third party to fundraise on our behalf, we will make this relationship and the financial arrangement transparent.
  • We will be able to explain our fundraising costs and show how they are in the best interests of our cause if challenged.
  • We will ensure our complaints process is clear and easily accessible.
  • We will provide clear and evidence-based reasons for our decisions on complaints.

We will be respectful

  • We will respect your rights and privacy.
  • We will not put undue pressure on you to make a gift. If you do not want to give or wish to cease giving, we will respect your decision.
  • We will have a procedure for dealing with people in vulnerable circumstances and it will be available on request.
  • Where the law requires, we will get your consent before we contact you to fundraise.
  • If you tell us that you don’t want us to contact you in a particular way we will not do so. We will work with the Telephone, Mail and Fundraising Preference Services to ensure that those who choose not to receive specific types of communication don’t have to.

We will be fair and reasonable

  • We will treat donors and the public fairly, showing sensitivity and adapting our approach depending on your needs.
  • We will take care not to use any images or words that intentionally cause distress or anxiety.
  • We will take care not to cause nuisance or disruption to the public.

We will be accountable and responsible

  • We will manage our resources responsibly and consider the impact of our fundraising on our donors, supporters and the wider public.
  • If you are unhappy with anything we’ve done whilst fundraising, you can contact us to make a complaint. We will listen to feedback and respond appropriately to compliments and criticism we receive.
  • We will have a complaints procedure, a copy of which is made available on request.
  • Our complaints procedure will let you know how to contact the Fundraising Regulator in the event that you feel our response is unsatisfactory.
  • We will monitor and record the number of complaints we receive each year and share this data with the Fundraising Regulator on request.

Fundraising Regulator
2nd floor, CAN Mezzanine Building
49-51 East Road
London
N1 6AH

T: 0300 999 3407
E: enquiries@fundraisingregulator.org.uk
W: fundraisingregulator.org.uk

Mother and daughter playing with binoculars in the woods

Make a donation today

Your donation will help us provide information and support for people living with epilepsy

Make a donation today

Your donation will help us provide information and support for people living with epilepsy

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