Epilepsy campaigning

The latest news on Epilepsy Action’s campaigns to improve the lives of people affected by epilepsy.

UK government launches new Neuro Forum
UK government launches new Neuro Forum
Kami Kountcheva | The UK government has launched the first ever Neuro Forum to address gaps in treatment care in neurology.
Wales epilepsy open access service closed
Wales epilepsy open access service closed
Kami Kountcheva | The Aneurin Bevan University Health Board’s (ABUHB) epilepsy open access service in Newport, Wales has closed due to inadequate staffing and sick…
Autumn Budget 2024 – bus fare cap criticised but spending on NHS welcomed
Autumn Budget 2024 – bus fare cap criticised but spending on NHS welcomed
Kami Kountcheva | Bus fare cap increase in the Autumn Budget, announced last week, has been criticised by charities and people with epilepsy.
Employment Rights Bill overlooks disability employment challenges
Employment Rights Bill overlooks disability employment challenges
Kami Kountcheva | Epilepsy Action says Labour’s Employment Rights Bill has “missed the opportunity” to support disabled people with finding and staying in work.
SUDEP Awareness Day: Why we need to talk about SUDEP
SUDEP Awareness Day: Why we need to talk about SUDEP
Joanne Doody’s son Peter died from sudden unexpected death in epilepsy (SUDEP) in May 2019 at the age of 21. Joanne shares why SUDEP awareness…
‘No employer would consider me’ – work and epilepsy
‘No employer would consider me’ – work and epilepsy
Kami Kountcheva | Recent news stories have suggested that people who are out of work are to blame for the spate of riots across the…
Darzi report highlights ‘critical state’ of NHS
Darzi report highlights ‘critical state’ of NHS
Kami Kountcheva | The NHS is in a “critical state, but the vital signs are strong”, according to the Darzi report into the state of…
Men taking valproate advised to use contraception – MHRA
Men taking valproate advised to use contraception – MHRA
Kami Kountcheva | Men taking the medicine sodium valproate and any female partners are advised to use effective contraception by the MHRA in a guideline…
Valproate scandal: MPs support call for redress scheme
Valproate scandal: MPs support call for redress scheme
Kami Kountcheva | MPs sign an open letter to Secretary of State for Health and Social Care Wes Streeting asking for compensation for anyone affected…
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