Joshua’s story

February’s Epilepsy Star award winner is Joshua Granelli, who has continually fundraised and raised awareness for epilepsy since his step-son was diagnosed with the condition. Joshua has currently completed five runs for Epilepsy Action, including the London Marathon, London Landmarks and Cardiff Half. He is now due to complete The Ironman in September this year in aid of Epilepsy Action. Joshua was nominated by his partner Ceri, who says he hasn’t stopped since her son’s diagnosis and shows no signs of slowing down:

“My son, Ioan, developed epilepsy three years ago when he was only 14. At the time, we didn’t know much about epilepsy, and so we turned to Epilepsy Action to help us with support and advice. Josh decided that he wanted to give back and ensure other families can get the support they need, whilst also raising awareness of the condition.

“Three years ago Josh couldn’t run – now he doesn’t stop! His next big event is the iconic Wales Ironman. This includes a 2.4mile swim, 112mile bike ride and ends with a 26.2mile full Marathon. It will be the biggest physically enduring challenge that Josh has done.

“Our lives were turned upside down by Ioan’s epilepsy diagnosis. As parents, you never get used to seeing your child have a seizure. Josh is always there for me during these times – he stays calm and holds me, whilst being there for my son. I don’t know what I’d do without him.

“Epilepsy Action helped provide resources and helped upskill us both to be able to feel confident in supporting Ioan. We’ve also seen how the charity has helped others too. Like many conditions, epilepsy can come with a stigma attached, and we know this needs to be broken down. That’s why Josh wants to play his part in raising awareness and funds for the charity, so they can keep breaking these barriers and supporting other families.

“Josh and I (pictured left) met in 2016, when we were helping to set up a new nursing team for adults with mental health issues and learning disabilities in the community. Josh completed his nurse training last year and is now a registered learning disabilities nurse in the Cardiff community. One of his main roles now is to work with adults and their families who have learning disabilities and epilepsy. He also works closely with epilepsy nurses and consultants. When I complete my training in 2028, I would love to become an epilepsy nurse.

“Aside from his fundraising, awareness efforts and giving back to the community as a nurse, he is also an amazing partner and dad. His patience, willpower and motivation are off the scale. His determination to keep going and continue supporting the people he loves and works with is inspirational.

“I’d like this award to be a surprise, but I am sure he will be over the moon. He is our hero.”

Chief executive officer at Epilepsy Action, Rebekah Smith says “We’re thrilled to give this month’s Star Award to Joshua, who is such a key supporter and fundraiser of ours. His determination and resilience to raise awareness for epilepsy is lovely to see and hopefully it will inspire others to do the same.

“It’s great to hear that Joshua and his family have been able to use Epilepsy Action’s services, such as our helpline, to support them on their epilepsy journey. Joshua’s donations will make a huge difference and help ensure other families can receive much- needed support, just like he did.”