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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

Diagnosed this week (two days before my 67th birthday) with epilepsy following two recent events at home. Huge relief to find out what’s been happening; after extensive tests and scans the...

Rylstone

At the age of 9 months old, doctors questioned if I was suffering from abscence seizures. I would black-out regularly and become unresponsive.

My nursery also identified the same issue. I...

Kent

I was diagnosed with epilepsy at the age of 17, while a lot of my friends were enjoying themselves drinking and partying, I was struggling trying to get the correct medication for a few tough...

Suffolk

Hi, My name is Aisha I was diagnosed on my 16th birthday, I was diagnosed With juvenile myoclonic epilepsy, and non epileptic seizures, I have been seizure free for 3 months and I have never had a...

Southampton

My name is Fran, I’ve had epilepsy since the age of 15, my first episode was when I sat up suddenly in bed after being asleep and I wasn’t fully aware of what was going on.

I stood up and I...

East Molesey

Hi, I’m Sean I’m 18, dropped out of school after year 10 and currently don’t do anything.

What I’ve just said and what I’m going to say normally causes people to say I’m just looking for...

Shrewsbury

I have been epileptic all my life from when I fell from my high chair
when I was less than 2 years old. I fell & landed head first on the hard
fire place in our lounge. Since then...

Redhill Arnold Nottingham

Hi I’m Jen and aged 47 and I was diagnosed with epilepsy at 11 months old, which is also when I had a stroke and lost the use of my left arm and leg.

As I grew my seizures weren’t very well...

Telford

My first seizure happened when I was 17 in 1998. I was up very early to go on my first ever lads holiday abroad, during a shower I remember jerking and then to what I later discovered was my first...

Chesterfield

I would just like to say to anyone who is looking at information about Aicardi Syndrome, that the information on this site is very informative and gives a clear, true overview of the syndrome....

Sheffield

I was born on 25 November 2002.

Up until my 15th birthday I had no history of epilepsy. However, on 10 December 2017, I had a seizure in my sleep followed by another on 27 January 2018....

Chigwell, Essex

Hi my name is Nick and I am a 37 year old record producer from Bristol, South West UK, and I have epilepsy.

My seizures are what they call focal seizures which mean the left side of my...

Bristol

Hi, I'm Emily but all my friends call me Ems. I am 16 and have epilepsy and have been diagnosed with it since the age of 12 but the doctors believe that I've had it since I was 8, maybe younger...

Shropshire

Hi my name is Thea for Theodora and my age is 16 and I still have epilepsy.

Everyone calls me Thea at school and I have difficulty speaking and with language. I found out I had epilepsy...

Dorking

When I was 9 my mother passed away from epilepsy, to this day we never knew what it was, the hospital and funeral people just put it down as a natural cause.

My mum was young and loved her...

Southampton

From the age 14, I'd get ready for school in the morning and have a cup of tea. My arm would jerk slightly. I thought it was normal. I just carried on with my day.

That happened for years...

Chesterfield

I was born with epilepsy and always was having seizures, and as I've grew up my seizures got worse, and after being on more than 3 different types of medicine for my type of epilepsy to try and...

I’m Daisy, I’m 10 years old and was recently diagnosed with absence seizures.

Having epilepsy is really hard, especially when you're a child since you can’t do as many things on your own...

Kentish Town

I was on dla for 19 years then it changed to pip system. Since then we got refused via the assessment as they didn’t apply bye the law that the upper tribunal made in 2017 to do with mobility and...

Leicestershire

Living with epilepsy isn’t simple, it takes away so much from you.

Before I was diagnosed I worked full time, I’d go out at weekends with friends, I was care free, then back in 2016 I had a...

Manchester

I'm a 37 year old teacher and I have had diagnosed epilepsy for about 20 years.

I was originally told I had JME (juvenile myclonic epilepsy) and it had been well controlled by Keppra for...

Hornchurch, Essex

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