We fight to improve the lives
of everyone affected by epilepsy


My Story: living with epilepsy

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with epilepsy when I was 4 years old. However when I was a baby there was several incidents where my mum and dad suspected I had epilepsy. When I was first diagnosed I could have...

Hi my name Kaitlin,

I had my first ever epileptic seizure on January 2013. I was at a friend's house and started randomly having a grand mal. After this stopped my friends phoned emergency...


This is my epilepsy. After an initial tonic clonic seizure aged 14 which put me in hospital, I was left for the next 5 years having multiple absence and partial seizures which were passed off by...


Becoming a mummy & also having a short film made about myself to raise awareness of epilepsy.
I have had uncontrolled epilepsy since the age of 10 (both Tonic Clonic, once a week or more...


I am currently studying HNC Photgraphy and decided having had health issues that led us down the path of investigations for epilepsy. That for My major unit I wanted to try and show what is often...


My epilepsy looks like this.....

I have had brain surgery to try and stop my seizures, but unfortunately it didn't quite stop my seizures, and I still take epilepsy medicines.


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