We fight to improve the lives
of everyone affected by epilepsy

 

My Story

Add your own

Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

I’m Raphael and I’m a normal happy 6 year old rebel. At times, when I'm asleep, I suffer from nocturnal seizures.

My 8 year old sister annoys me on a daily basis but are truly the bes of...

London

My epilepsy started when I was 40 year old. I had a professional job supporting pupils with behaviour and attachment issues in both Mainstream schools and Pupil, Referral, Units. The epilepsy...

Bradford

I had my first seizure when I was 18 months old. I then had a seizure aged 8 and one a year later. I was diagnosed with epilepsy and, later on, it transpired that I had photosensitive epilepsy too...

Manchester

As it is National Epilepsy Week 14th - 20th May I have been asked to write a few words about Epilepsy by my friend Louisa. More because she is fascinated by it,but also bcause of what Sky is doing...

Sheffield

My son had seizures for about 6 years. He lost his licence twice. He never got it back. He would not admit to still having seizures. I do believe most were at night. He would often look tired and...

suffolk

I began having absence seizures when I was 16. I didn’t know that’s what they were until I started driving. When I have a seizure I become very disorientated, I stare and they make me drool. I get...

I was 18, at the time, and working in Llanelli, but living in Swansea. I had not passed my driving test, so the only way I could get to work, was by motorbike. Anyway, this night, I had a terrible...

Swansea

I was diagnosed in 1986 with what was then called petit mal seizures. I was put on valproate. At 19 I had 3 tonic clonic seizures and had my medication changed to the then new drug Lamotrigine. A...

Verwood

Hi, my name is Darren and I am 56 years years of age. I became epileptic after a head injury during my military service with the Parachute Regiment a career that I loved but was sadly cut short...

Tamworth

I had my 1st seizure back in 2012 at the time i was getting ready to start my last semester in college. The class i needed was in a city 30 minutes away and was unable to drive for 6 months....

Louisiana

Hi there
My 28 year old daughter who is mentally many years younger than her actual years was diagnosed when she was four years old.

She takes various seizures such as Myoclonic Jerks...

Glasgow

I was diagnosed with absence epilepsy (then known as petit-mal) when I was 11 years old.

My parents thought I was going to be a difficult teenager as I would look like I was bored when they...

Manchester

Epilepsy is a weird one for me. I’ve had grand-mail seizures since childhood, but I’m very lucky to only have them a few times a year if I manage my lifestyle. I have fits if I don’t sleep, this...

Leeds

Two weeks...
Two weeks... that is how long I've been diagnosed with epilepsy.
It has been a strange couple of weeks. But nothing has changed; I still needed to hand in my dissertation...

Bristol

In August 2014, when I was 25, I had a tonic-clonic seizure whilst driving on the M62. Luckily noone else was involved and apart from a few bumps and bruises I was fine. My car, however, was...

Selby

I was like most young people, drinking and partying. It was my favourite thing to do, longing for the weekend to come and going clubbing.
Although I was drinking excessively, more than I...

Hove

I’ve read so many inspirational stories from people affected by epilepsy, many in such awful ways. Mine is very different…
I was diagnosed with temporal lobe epilepsy in April 2014. I don’t...

Bourne, Lincolnshire

Living with epilpsey for me is hard.. feeling like you can't acheive certain things. Being back on medication was hard, but I'm managing very well. I'm still able to attend college, see close...

Nottingham

I was diagnosed with temporal lobe epilepsy when I was 18 years old. I live with simple partial seizures and tonic clonic seizures. My tonic clonic seizures have reduced from daily to an average...

Rotherham

When I was diagnosed with epilepsy in the 80s it was a big deal at the time - the unknowns, the driving, the swimming, trying to find work. But really wasn't truly a big deal until I had my...

London

I was diagnosed with Epilepsy in February 2018 at the age of 20. I was in my third year of university. I had suffered a few seizures up to this point, but it wasn't until I experienced my third...

Chester

Pages

e-action newsletter

Subscribe to our e-action newsletter and stay informed

Subscribe to e-action newsletter feed