Epilepsy campaigning

The latest news on Epilepsy Action’s campaigns to improve the lives of people affected by epilepsy.

Valproate: Families “can’t wait any longer” for redress
Valproate: Families “can’t wait any longer” for redress
Kami Kountcheva | Families harmed by exposure to valproate during pregnancy “can’t wait any longer”, says Epilepsy Action on the one-year anniversary of The Hughes…
Better access to disability benefits could boost the economy – report
Better access to disability benefits could boost the economy – report
Kami Kountcheva | The economic value of disability benefits outweighs the cost, a new report by economists at Pro Bono Economics (PBE) has found.
Medicine shortages: tips to help make sure you don’t run out
Medicine shortages: tips to help make sure you don’t run out
Kami Kountcheva | While we lobby the government for long-term solutions and expand our helpline to offer more targeted support around medicine, we share tips…
New service launched for people harmed by epilepsy medications in the womb
New service launched for people harmed by epilepsy medications in the womb
Kami Kountcheva | People affected by epilepsy medications while they were in the womb can now seek support from a new Fetal Exposure to Medicines…
Cannabis: Families forced to break law to “save children’s lives”
Cannabis: Families forced to break law to “save children’s lives”
Kami Kountcheva | A new report by Medcan Family Foundation reveals 382 UK families are taking a “last resort” and sourcing illegal cannabis products to…
UK government launches new Neuro Forum
UK government launches new Neuro Forum
Kami Kountcheva | The UK government has launched the first ever Neuro Forum to address gaps in treatment care in neurology.
Wales epilepsy open access service closed
Wales epilepsy open access service closed
Kami Kountcheva | The Aneurin Bevan University Health Board’s (ABUHB) epilepsy open access service in Newport, Wales has closed due to inadequate staffing and sick…
Autumn Budget 2024 – bus fare cap criticised but spending on NHS welcomed
Autumn Budget 2024 – bus fare cap criticised but spending on NHS welcomed
Kami Kountcheva | Bus fare cap increase in the Autumn Budget, announced last week, has been criticised by charities and people with epilepsy.
Employment Rights Bill overlooks disability employment challenges
Employment Rights Bill overlooks disability employment challenges
Kami Kountcheva | Epilepsy Action says Labour’s Employment Rights Bill has “missed the opportunity” to support disabled people with finding and staying in work.
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