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Frisium and Epilim supply affected by delivery delay in the UK

1 Aug 2019

There has been a temporary disruption to the supply of some medicines made by Sanofi, including Epilim and Frisium. Sanofi has sent us the following statement:

“Following the implementation of a new IT system by our third-party logistics provider, Kuehne & Nagel, at their warehouse in Chapeltown, pharmacies in the UK will have experienced delays in the delivery of some Sanofi medicines.

Deliveries of Sanofi medicines have now been increased significantly and we expect stock levels at our wholesale suppliers to be back to normal by 2 August 2019.

Sanofi Pasteur vaccines are not affected by this temporary disruption as supply for these products is handled by a separate logistics provider, Movianto.

Patients who have concerns about the availability of a Sanofi medicine should get in touch with their pharmacist who can contact the appropriate wholesale supplier to check stock availability in their area. If pharmacists have additional enquiries regarding overall stock availability, they can contact Sanofi Customer Services on 0800 854 430 so that we can assist and help resolve the issue.”

Comments: read the 16 comments or add yours

Comments

My pharmacy in Leysdown on Sea. Is having trouble filling my prescription and I am having to go in daily for a couple of days worth of pills. I've now missed a whole day and I'm stressing badly. Also I'm supposed to be going on holiday in September so what shall I do. Will Epilim be back to normal soon.

Submitted by Rosalyn Walker on

Hi Rosalyn,

As stated above, Sanofi expect stock levels to be back to normal by 2 August 2019, so pharmacies should be catching up shortly.

I hope that helps.

Submitted by Josh - Epilepsy... on

It's the ninth and still having problems with Epilim. Two pharmacies I've visited have none and don't know when they will be in, no information from suppliers! ... Trouble is people will stockpile making situation worse... God knows what it will be like if there's a no deal brexit... Apparently plans are in place... Hmmmm.

Submitted by Lloyd on

Informed today this product is not available at wholesalers.
It would be useful for an update on future availability

Submitted by Ken Southwell on

I have not been able to get my eplium have rung round the chemist's with no avail when will they be back in stock I live in Redditch in worcestershire

Submitted by Robert Keates on

Hi Robert

We have heard from a number of people that they are having trouble-accessing Epilim from pharmacists. When we contact the manufacturer, Sanofi, they said that supplies of the following tablets should be back at the wholesalers AAH over the days of 13, 14 and 15 August.  

Epilim Chrono tablets 200mg and 300mg

Epilim Gastro-resistant tablets 200mg and 500mg

You could ask your pharmacist to call AAH if they haven’t already done so.

I hope one of these tablets are what you take. If not please come back to us with details of your Epilim.

Regards

Diane

Epilepsy Action Helpline Team

Submitted by Diane - Epileps... on

Still unable to source Epilim Liquid when is this likely to be available? HG2 post area

Submitted by Shirley on

Hi Shirley

Thank you for your question.

It’s a worrying time when epilepsy medicine is not available. But I have spoken to Sanofi today and they have said Epilim liquid is being delivered to wholesalers this week.

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Diane

Epilepsy Action Helpline Team

Submitted by Diane - Epileps... on

Hi,

I am consistently having trouble getting these now. It has been going on since March this year. I have had to use 300mg and 200mg tablets instead, though I even had problems getting those too. Is there any effect on bio-availability with taking more smaller tablets? My doctor does not seem sure and it does concern me.

Also, the pack sizes I can get seem to be 30 tablets only now. The waste in packaging is absurd.

I wish I could get hold of alternatives like Epival, which are far easier to store since they come in jars and not huge blister packs. Seems Sanofi have stitched up the UK market for sodium valproate.

Submitted by Mark Elliot on

Hi Mark we haven’t heard that there is a problem with bio-availability with taking more smaller tablets. Your pharmacist may be able to give you advice on this.

Regards

Mags

Epilepsy Action Helpline Team.

Submitted by rich on

Put a prescription in 8 days ago my daughters epilim liquid still hasn't arrived neither has her ethosuximide, told its supply issues. Epilim runs out today. We have been told it will be in Friday fingers crossed. Serious questions need to be asked why the supply chain has collapsed.

Submitted by Ryan on

My pharmacy has not got any Epilim Gastro-resistant tablets 200mg which I take 3 tablets x 2 daily, Mr gp has prescribed 300mg but I don't she was aware that these are chrono tablets and if I would be suitable. (New gp)
My pharmacy is in Burnham on Sea Somerset. When do you think supplies will be back to normal as I am very aware changes can be detrimental to my epilepsy and this could have a serious knock on effect. I look forward to your reply thank you

Submitted by Abi ryder on

Hi Abi,

Thank you for your post.

Firstly, we have spoken to Sanofi on the 13 August. They told us that supplies of the following tablets should be back at the wholesalers AAH over the days of 13, 14 and 15 August.  

Epilim Chrono tablets 200mg and 300mg

Epilim Gastro-resistant tablets 200mg and 500mg

Epilim crushable 100mg tablets

If your chemist is still having problems obtaining your Epilim, they could talk to their wholesalers.

Regarding your GPs comment about taking a different type of Epilim.

Epilim Chrono is a prolonged release formulation of Epilim that reduces peak concentration and ensures more even plasma concentrations throughout the day.

Gastro-resistant Tablets are “enteric coated” this means that the tablets have a protective coating that allows them to reach the intestines (gut) without being dissolved in the stomach first. This helps stop them from causing a stomach upset.

The drug manufacture says -In patients where adequate control has been achieved Epilim Chrono formulations are interchangeable with other Epilim conventional or prolonged release formulations on an equivalent daily dosage basis.

This means the ingredient is equivalent but how the body absorbs it is different. Some people say they have no problem with taking different versions but some people have said it has caused them side-effects. It’s all about looking at what is best for the patient when there is a supply problem with their usual epilepsy medicine.

Regards

Diane

Epilepsy Action Helpline Team

Submitted by Diane - Epileps... on

I have also had increasing difficulty in getting hold of generic sodium valproate, causing me stress. My last prescription came in 3 lots over nearly four weeks in August despite assurances from manufacturers that supplies were increasing significantly. Government asked for stockpiles to be built up against the prospect of a no deal Brexit .

Submitted by Deborah Bunn on

Hi, it’s the 18th of September today and getting Epilim Chrono in the Mansfield area ( Nottinghamshire) is still proving impossible. We have tried Rowlands , Lloyds, Boots and a couple of independent pharmacies and no one has any stock and cannot get any. Why is this the case if Sanofi state AAH have stocks !! What are we supposed to do

Submitted by Paul Buckley on

Hi Paul

I’m sorry to hear you’re still having problems getting your Epilim. Sanofi on the 10 September told us there are no supply problems with Epilim and its back at the wholesalers. Their advice to people having problems is to speak to their pharmacist who can contact their supplier to check stock availability in their area. If pharmacists have additional enquiries regarding overall stock availability, they can contact Sanofi Customer Services so that we can assist and help resolve the issue.

 

Regards

Diane

Epilepsy Action Helpline Team

Submitted by Diane - Epileps... on
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