Epilepsy award for Truro support group

Published: November 28 2019
Last updated: September 27 2022

The Epilepsy Action Award for Local Group goes to the wonderful Truro support group.

A lifeline for people affected by epilepsy, they welcome a broad range of people throughout Cornwall. Set up over 15 years ago, the group is run by volunteers and local specialist nurse Mary Parrett. Mary was the driving force in creating the group. Up to 40 people come to monthly meetings to enjoy guest speakers and games. The group also arranges outings, such as theatre and boat trips.

Mary and the team receive great feedback about their impact on the community: “I have made many good friends who, because they are in similar situations, understand how much epilepsy can affect your life.”

“It has boosted my confidence and given me the courage to help raise awareness. I’ve also been able to teach others about my particular epilepsy, how not all types are the same and how it’s very often not completely controllable.”

“There is always something going on, from a paramedic demonstration to a quiz or hobbies evening. It’s brilliant! I don’t know where I would be without it!”

Julie Ford, Epilepsy Action volunteer, accepted the award.

She said: “It is a pleasure to receive this prestigious award. It is a huge team effort, with many people giving up their time to make our group such a success. Our aim has always been to provide a relaxed environment offering friendship, education, fun, compassion as well as support. It’s invaluable to people dealing with an epilepsy diagnosis, and their relatives and carers, especially when their condition can become so isolating.”