Family support Wales
Contact Amy our Family support officer
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Please note - this is currently only available in the Cardiff area
This is a pilot service, and we are only able to offer it in Cardiff and the surrounding areas at the moment.
Meet Amy
I’m Amy and I am the Family Support Officer for Epilepsy Action in Wales.
I have lots of experience with children and young people who have additional needs, both personally and professionally. After twelve years of working in primary schools, I was excited to begin working at Epilepsy Action to support children and their families in a different way.
My main aim is to improve the lives of children who have epilepsy, whether that be through training the professionals that work with them, signposting their parents and carers to services that can support them, or raising awareness of epilepsy so that those who live with the condition can be better understood.
About the Family Support service
The aim of our family support service is to raise awareness of epilepsy and improve
support for children affected by epilepsy in primary schools through:
Family support
- We welcome contact from parents, guardians and carers
- We can offer a listening ear, share relevant information and signposting to other relevant agencies
Staff training
A session for adults working with children who have epilepsy, e.g. school staff, social workers, childcare workers, sports coaches and more. It covers:
- Signs and symptoms of epilepsy
- An overview of diagnosis and treatment and how schools or other settings can help
- The impact of epilepsy and anti-seizure medication on learning, memory and behaviour
- Links with other conditions
- How to safely manage epilepsy in the classroom and further afield such as in swimming lessons
School assemblies
- A child friendly overview of epilepsy to raise awareness and understanding
Class workshops for school-aged children
- A more in-depth discussion about epilepsy with activities
- This can follow on from the assembly or be delivered as a standalone session
- These sessions can be adapted to suit the age and ability of the pupils
Small group sessions
- A sensitively managed series of activities to encourage discussion about epilepsy
- These are aimed at children and young people who are directly impacted by epilepsy in some way, e.g. young people who have epilepsy themselves, their closest friends, or family members of someone with epilepsy
- An opportunity to ask questions and share experiences
Want to know more?
If you’d like to know more about the service or to find out if we can deliver in your setting, please get in touch with me at awalker-robinson@epilepsy.org.uk or complete the form below.