The Epilepsy Action helpline

The service is confidential. We will only share what you tell us if we are concerned that you or someone else is in danger and/ or at risk of harm. If we think this is needed, we will explain this to you. Wherever possible, we will involve you in this process and ask for your consent to contact support services. See our Safeguarding policy.

When you contact us, we’ll ask to take your details to keep a record of your enquiry and any advice we have given to you. This helps us:

• if you contact us again- we’ll know what you told us before, and what we discussed which means we can provide you with a good service
• to improve our services through quality monitoring and ensuring we are reaching everyone affected by epilepsy
• if we need to contact support services for you

All calls are recorded for training purposes.

If we arrange to call you back, our helpline number will be withheld. If you have chosen to block anonymous or withheld calls to your phone, you will need to tell us to call you back without withholding our number.

For more information about how we collect and use personal data, please see our privacy policy.

Support in other languages

We can offer advice and information in different languages using a telephone interpreting service.

To use an interpreter:

• Call the Epilepsy Action helpline on 0808 800 5050.
• Tell the helpline adviser which language you need

We will take your name, phone number and the language you need. We will end the call with you and contact our interpreting service. It should only take a few minutes for us to set things up and call you back.

Text relay

Our helpline staff can take calls via text relay.

Epilepsy Action is a member of the Helpline’s Partnership, and our helpline is a certified Helplines Standard service. The Helplines Standard is a quality mark recognised across the UK, which certifies best practice in helpline work.

Epilepsy Action is the only UK epilepsy charity to have achieved the PIF tick quality mark for it’s health information resources. This helps us give you accurate, up-to-date information you can trust.

In 2023 the Helpline Team won ‘Helpline of the Year’ at the Helpline Awards. To find out more, visit our news article about the awards.